Your registry information
Notice version: registry-2026-10-09. This notice explains how HopeStage handles information from adults who join the research registry.
Who is responsible?
HopeStage manages this registry. Contact hi@hopestage.com with privacy questions or to exercise your rights.
What we collect and why
We collect your email, country, mental health topics of interest, research preferences and permission choices. First name, city or region and mobile number are optional. We ask you to confirm you are at least 18; we do not collect your date of birth or require a diagnosis. Interests can reveal sensitive health information.
Your explicit permission lets us store this information and manage the registry. Separate choices control research invitations by email, SMS and feedback invitations by email. We send essential verification and preference-management emails even if you decline research invitations. We do not use registry information for advertising, sell it or determine medical eligibility.
Who can see it?
Only authorised HopeStage administrators have registry access. Supabase supports data storage, Webflow Cloud hosts the applications and Brevo delivers requested emails. Brevo receives your email and a private management link, not your mental health topics. Our service providers act for these purposes. Joining does not authorise sharing your information with a sponsor, research organisation or study site. If you later express interest in a specific study, its separate notice explains the recipient and requested permission.
Your choices and retention
Use a secure email link to access or change your preferences, stop a particular contact channel or leave. Links expire in 24 hours. Leaving stops registry contact and removes your first name, region, phone and interests from the membership. A limited record of your email, country, registration and consent history remains to document your request and avoid contacting you. Contact us to request erasure or a copy of your information; we will explain any record we must retain and why. Consent history is never silently overwritten.
Unverified requests and inactive records are subject to HopeStage's retention review. Registry information is kept only as long as needed for the stated purposes or applicable record-keeping requirements.
Measurement without advertising trackers
Registry pages do not load our advertising or third-party analytics tools. We count page visits, signup steps and permission changes in our own database. These event counts contain no email, phone number, diagnosis, free text or device identifiers. Administrators can see country and topic distributions within the protected registry. If a verified member later submits study interest through HopeStage, a private record lets us count that transition separately from qualified referrals. A brief essential session cookie lets you manage preferences securely.
France
You can ask for access, correction, erasure, restriction or a portable copy where applicable, and withdraw consent at any time without affecting earlier lawful processing. You can complain to the CNIL. Any transfer outside the European Economic Area must use applicable safeguards.
Australia
You can request access or correction and raise a privacy complaint with HopeStage. If it is unresolved, you can contact the Office of the Australian Information Commissioner. Your separate permission controls research-related email and SMS contact.
United States
Privacy rights vary by state. Contact HopeStage to request access, correction, deletion or withdrawal of permission. We do not sell registry information or share it for targeted advertising. This registry is not a medical record system and joining does not establish a treatment relationship.
Other countries and territories
You can use a secure email link to manage your preferences or leave the registry wherever you live. Contact hi@hopestage.com with questions about your information or privacy requests relating to your location.