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Study ID: NCT04155944. We help you review the study, but cannot decide medical eligibility.
CompletedNCT04155944
Diagnosis of Prader-Willi Syndrome and Angelman Syndrome
This study is completed. It focuses on mental health and currently lists study information in Taiwan.
Mental health, Mental Disorder, ...OtherUp to 45 Years
Key information made simple
This study exists to explore whether a digital app or remote support tool could improve care and understanding. Researchers are trying to understand what a digital app or remote support tool could change in day-to-day care and decision-making. For people living with Mental health, the gap between what sounds good on paper and what works in daily life is often important. If the findings are useful, they could help future care become more targeted, practical, and easier to trust. Taking part helps build the evidence that can improve understanding and care for others over time.
Your next step
The official record suggests in-person participation through a hospital, with sites including National Cheng-Kung University Hospital in Tainan. Participation appears to center on questionnaires, assessments, or follow-up information rather than a study treatment. The main fit is usually meeting the main study requirements. The official record does not list a trial phase, which usually means the study is focused on observation rather than testing a staged treatment.
Questions to ask before joining
- What are the exact eligibility criteria, and what could exclude someone?
- How many visits, assessments, or follow-ups are expected, and over what period?
- What risks, side effects, practical burdens, or alternatives should be understood first?
- Who should be contacted to confirm locations, timing, compensation, and next steps?
Things to check before joining
Study start dateStarted: August 2013
- Recruitment status
- Completed
- Estimated enrollment
- Not clearly listed
- Sponsor
- National Cheng-Kung University Hospital
- Sponsor type
- Hospital / academic medical center
- Study type
- Other
- Intervention type
- Other / unclear
- Study phase
- Not clearly listed
- Locations
- Taiwan
- Age range
- Up to 45 Years
- Official registry ID
- NCT04155944
- Official title
- Diagnosis of Prader-Willi Syndrome and Angelman Syndrome
- Official source
- Official registry link
Want help reviewing this study?
Study ID: NCT04155944. We help you review the study, but cannot decide medical eligibility.
For you
Taking part may help improve understanding of your condition.
It requires regular visits and structured follow-up.
Requires travel, with in-person participation in Taiwan.
Not medical advice
Information from public sources. Are you the study sponsor? Contact us to update this page: hi@hopestage.com
Questions about this study
What is this study trying to understand?
This study is exploring digital app or tool for people with mental health. Participants may complete study visits, assessments, or follow-up activities defined by the research team. Direct benefit is not guaranteed. The detailed objective is not always clearly listed in the public registry; the study team can confirm.
Why is the study type not clearly categorized?
The study type is not clearly categorized in the public registry. Focus on the objective, required tasks, visits, any intervention, and eligibility criteria, then ask the study team to confirm.
Who might this study be for?
This study may concern people with mental health; age range: Up to 45 Years. The criteria appear fairly specific, but you should not assume you are eligible. The study team must confirm diagnosis, age, exclusions, available locations, and next steps.
What would I likely need to do?
The public registry does not clearly describe all participation steps. The listed study locations suggest that at least part of participation may involve a physical site. Ask whether some steps can be done remotely.
What risks or points should I check?
The public registry does not make the main risk category clear. Ask the study team what activities are required, what could feel uncomfortable, how safety is monitored, and what happens if you want to stop. For any mental health study, also ask who to contact if you feel worse, whether participation may affect current treatment, whether you can stop, and who confirms eligibility.
Will I need to travel or attend in-person visits?
The listed study locations suggest that at least part of participation may involve a physical site. Ask which sites are open, how many visits are expected, whether any steps can be done remotely, and whether travel costs or compensation are listed.
Who is behind this study?
This study is sponsored by National Cheng-Kung University Hospital, which appears to be a hospital or academic medical center. If available, it can be useful to check the sponsor website, collaborators, investigator affiliation, and the official registry before deciding. HopeStage does not judge the quality of a sponsor or researcher, but helps you identify what to verify.
Can I still join this study?
The registry indicates that this study is completed. It may still be useful for understanding the research, but you are unlikely to be able to join.
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